Jonny SmithFrom a lacking signal turning up throughout the Irish sea, to cancelled festivals and youngsters locked in a play park – listed below are a few of the tales from Cumbria you could have missed this week.
Battle to get free ‘life-changing’ drug virtually over
The household of a 10-year-old with a muscle-wasting situation has stated it’s outrageous that they need to combat for entry to a free drug to gradual its progress.
Givinostat was conditionally authorized in December to assist gradual the development of Duchenne Muscular Dystrophy (DMD), however was was solely accessible in Leicestershire and Swansea attributable to native NHS finances preparations.
The North East belief treating 10-year-old Macaulay, from Penrith, stated it was “finalising preparations” to make it accessible, after his household stated that they had spent months campaigning.
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Lacking museum signal discovered throughout Irish Sea
Jonny SmithA dad and his daughter made an uncommon discover whereas on a stroll alongside the coast – a misplaced signal for a museum on the opposite facet of the Irish Sea.
Jonny Smith and his seven-year-old lady noticed what they thought was a little bit of wooden whereas strolling at Bangor in Northern Eire.
After an web search, they realised it was an indication belonging to The Dock Museum in Barrow-in-Furness, Cumbria.
“I will be utilizing these signal writers once more, it is in good nick,” joked museum supervisor John Irving.
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Followers’ refund frustration over cancelled festivals
KubixTicket holders have spoken of their disappointment and frustration after a lot of festivals have been cancelled – together with one in Cumbria – leaving folks tons of of kilos out of pocket.
Wannasee Penrith was amongst a sequence of occasions formally cancelled following days of hypothesis.
Organiser Wannasee Ltd stated it was “not in a position to proceed” with the occasions and was in discussions with liquidators. It suggested folks to contact ticket suppliers or card issuers for refunds.
Ticket supplier Skiddle stated its “repeated requests” to organisers to launch the cash for refunds to be processed had gone “unheard”.
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‘Social media would not present you trauma of mountain rescue’
A fast improve within the variety of call-outs that mountain rescue groups obtain have sparked fears they could attain breaking level .
Social media exhibits the “good bits” of strolling within the Lake District, Matt Neilson says.
“You do not see the trauma and the our bodies that we’ve got to hold off when it goes fallacious,” he provides.
In 2023 there have been 61 call-outs, and in 2024 that soared to 110, with the group’s patch together with the hills round Ullswater, Helvellyn and the infamous Striding Edge.
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‘Reckless’ youths get trapped in play park
Cumbria PoliceA police drive has criticised a gaggle of youngsters who needed to be rescued from a kids’s play park once they hid from employees.
Cumbria Police stated it was known as to the brand new Shiver Me Timbers web site in Maryport after three youths “purposely evaded employees at closing”, and wasted greater than an hour of emergency service time, “which may have price lives”.
Stephen Ashworth, from Maryport City Council, stated the council “trusts that the mother and father of the perpetrators would clarify to their kids the recklessness of their actions”.
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